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Join NORD for a virtual Community Conversation on The Living Rare Study, the first-ever large-scale effort in the US to track the evolving experience of thousands of individuals and caregivers impacted by rare diseases! Participants will receive step-by-step education on how to participate in the study. NORD staff will demonstrate how to create an IAMRARE account, the process of reading the consent form, how to navigate the study once you are able to access it, and more!