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Driving Cures for Rare Diseases: The Role of Patient Nonprofits in Engaging Industry and Academic Researchers to Accelerate Drug Development
Patients and caregivers should be included as equal partners in the drug development process, particularly for rare conditions where limitations on what we know about a disease may exist. Rare disease nonprofit organizations can drive research and data collection efforts that may be leveraged to guide researchers toward meaningful outcomes and patient-centric clinical trial designs.

Join us to learn how community-led collaborations with industry and academic researchers can accelerate drug development by encouraging data sharing and collaborative engagement with initiatives, such as the Rare Disease Cures Accelerator – Data and Analytics Platform (RDCA-DAP). Discover how rare disease nonprofits can play a role in advancing treatments and cures for their communities.

Mar 31, 2021 02:30 PM in Eastern Time (US and Canada)

Webinar is over, you cannot register now. If you have any questions, please contact Webinar host: Debbie Drell.