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Topic
NORD Grassroots Advocacy Training: Protect Medicaid
Date & Time

Selected Sessions:

May 13, 2025 12:00 PM

Description
In the coming months, Congress could vote on legislation that would strip Medicaid coverage and funding away from millions of rare disease patients. Please join us to learn more about the importance of the Medicaid program to rare disease patients and caregivers, tips on how to tell your story, and how to make your voice heard on this and other issues impacting the rare disease community! We will also discuss NORD’s programs and services, including how the Living Rare Study is helping us understand the rare disease community's health care coverage and access experiences.