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Topic
2025 Rare Disease Day Grassroots Advocacy Webinar
Date & Time
Selected Sessions:
Feb 18, 2025 12:00 PM
Description
We will discuss NORD’s federal policy priorities and tell you how you can get involved in advocating for pressing rare disease policies being considered now in Congress. We will also roll out our 2025 State Report Cards, which evaluate how effectively states throughout the U.S. are serving people with rare diseases in need of affordable, quality health care. We need your voices!